IMPACT CASE STUDY

Providing resources for young people seeking help online for mental health

  • 22 January 2025
  • Associate Professor David Coyle, Dr Claudette Pretorius
  • Health, Social, Technological

 

Summary

Early intervention is crucial to addressing mental health difficulties. It can have a transformative impact, preventing young people from falling into crisis. Professor Coyle and Dr Pretorius’s research focuses on help-seeking, a critical first step in enabling early intervention. Help-seeking for mental health difficulties is often understood as a situation where a person communicates their distress to others with the goal of getting help in the form of understanding, advice, information, treatment or general support. Evidence suggests that help-seeking in young people usually starts online. Prior to this research, online help-seeking was poorly understood. Working in close collaboration with Irish mental health organisations, the research team has developed evidence-based resources to support improved online help-seeking. This research has had a direct impact on young people and has been used by spunout, a website which shares factual information on mental health and wellbeing. The research has also informed the design of a new youth help-seeking platform, developed by spunout, and endorsed by the Minister of State in the Department of Health (Mental Health and Older People), Mary Butler.

Research description

This research focused on how young people experiencing mental health difficulties seek help online. It began with a systematic review of the barriers and facilitators young people experience. The resulting paper, published in the Journal of Medical Internet Research, is amongst its most highly cited papers of the past five years and it is cited in the World Health Organisation Global Report on Assistive Technology.

To better understand the experiences of young people in Ireland, the researchers conducted a large-scale cross-sectional survey. This allowed them to identify key groups, including:

  • those seeking online help for the purposes of obtaining information on mental health;
  • those seeking to speak to an actual person about their issues;
  • those in crisis who need urgent mental health support.

In collaboration with Jigsaw, the team conducted a series of workshops involving 35 members of the Jigsaw youth advisory panel. As a result, the team developed and evaluated a series of interactive help-seeking prototypes.

Through this work the team also developed a new theoretical model of online help-seeking. It combined prior offline theories, needs-based motivational theories, and information-seeking theories drawn from computer science literature.

As a result of this research, the team were able to identify key design criteria for future digital services, including:

  • the need for accessible and trustworthy information online;
  • recognition of different levels of need and different levels of mental health literacy amongst help-seekers;
  • support of different types of human connectedness;
  • support for both immediate and long-term action.

Research team and collaborators

 

  • Dr David Coyle - Associate Professor;
  • Dr Claudette Pretorius - Assistant Professor. This work formed a core part of Claudette’s PhD and postdoc at UCD. David supervised Claudette’s PhD. They worked together on each study. More recently. Claudette wrote the Navigator guidelines document. This document translated the research into an accessible and actionable format that directly informed the Navigator project. David is a member of the HSE Advisory Board for the Navigator project.
  • Derek Chambers CEO, ReachOut Ireland (2009 - 2017). Derek was closely involved in the initial project development and co-supervised the first year of Claudette’s PhD. He co-authored the systematic literature review and online survey and helped to establish collaborations with Jigsaw and spunout.
  • Naoise Kavanagh, eMental Health Programme Manager, Jigsaw (2018 - 2022). Naoise facilitated the recruitment for the co-design workshops with the Jigsaw youth advisory panel, helped facilitate the sessions and co-authored the resulting paper.

Funding

 

  • This research was initially funded by the TEAM ITN project. TEAM was a 4 year Innovation Training Network (ITN), which was funded by the EU Horizon 2020 programme under the Marie Skłodowska-Curie actions (grant agreement no. 722561) and provided doctoral training for 15 early career researchers. TEAM provided the funding for Claudette Pretorius’ PhD at UCD.
  • Following this, the SFI Insight Centre for Data Analysis provided additional funding for an 18 month post-doctoral fellowship for Claudette.

Research impact

Health and social impact

Estimates suggest that mental health problems affect 84 million people (1 in 6) in the EU. Large-scale studies also conclude that many people experiencing mental health difficulties face significant barriers in accessing appropriate help. Young people have been identified as particularly vulnerable. The European Commission has stated that “Europe is witnessing a worsening of the mental health of the younger generations”. Reflecting this, the European Youth Strategy and European Youth Goals (2019-2027) call for urgent action targeting youth mental health.

The team’s research was directly informed by the needs of young people and mental health service providers. The initial research proposal was developed in close collaboration with ReachOut Ireland and focused on their need for scalable digital sign-posting for young people.

The research included a large online survey and the team worked directly with young people to ascertain their needs. This research was undertaken in collaboration with ReachOut, Jigsaw (Ireland’s National Centre for Youth Mental Health) and spunout (Ireland’s Youth Information & Support Platform) and as a result the team have developed a new theoretical model of online help-seeking and have been able to identify key design criteria for future digital services in this area.

Reader journeys on spunout

The research resulted in a model of online help-seeking which maps this behaviour by examining young people’s motivation to seek support. It then breaks help-seeking into a series of steps, from initial awareness of difficulty to action. It provides recommendations on how technology can help or hinder young people at each of these steps.

Spunout is an Irish youth information and support platform. Their website is a key national resource for young people seeking help, receiving over 2 million visits per year. Spunout applied this help-seeking model to create reader journeys that guide its internal strategy and support the design of online resources.      

Technological and educational impact

In late 2023, Minister of State in the Department of Health (Mental Health and Older People), Mary Butler, committed to funding a digital technology project to support youth mental health in Ireland. This began as an open process where service providers were invited to identify potential projects. Led by CEO Ian Power, spunout Ireland proposed the development of an online help-seeking platform for young people. This proposal was successful, resulting in the Navigator project.

The Navigator platform is directly informed by this research. Working with spunout, the team created a design guide for the project. This document translated the research into an accessible and actionable format to guide the design and development of the Navigator platform. The platform will be launched on a pilot basis in late 2024, with a full national rollout expected in 2025.

Navigator will have a national impact. It will help young people to navigate the mental health care system, including how to use traditional and digital services. This will encourage engagement and early intervention.

This research provided the perfect foundation and methodology on which to build our ‘Reader Journey' framework. The framework is an overarching guide for our information team, guiding the development and dissemination of new resources for young people, wherever they are at in their journey.

Ian Power, CEO spunout

Selected articles

 

  • Pretorius, C., Chambers, D. and Coyle, D. (2019). Young people’s online help-seeking and mental health difficulties: Systematic narrative review. Journal of medical Internet research, 21(11), p.e13873. https://doi.org/10.2196/13873
  • Pretorius, C., Chambers, D., Cowan, B. and Coyle, D. (2019) Young people seeking help online for mental health: cross-sectional survey study. JMIR mental health, 6(8), p.e13524. https://doi.org/10.2196/13524
  • Pretorius, C., McCashin, D., Kavanagh, N. and Coyle, D. (2020) Searching for mental health: a mixed-methods study of young people’s online help-seeking. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (pp. 1-13). https://doi.org/10.1145/3313831.3376328
  • Pretorius, C., McCashin, D., & Coyle, D. (2022). Supporting personal preferences and different levels of need in online help-seeking: a comparative study of help-seeking technologies for mental health. Human–Computer Interaction, 1-22. https://www.tandfonline.com/doi/full/10.1080/07370024.2022.2077733
  • Pretorius, C., McCashin, D. and Coyle, D., 2022. Mental health professionals as influencers on TikTok and Instagram: What role do they play in mental health literacy and help-seeking?. Internet interventions, 30, p.100591 https://doi.org/10.1016/j.invent.2022.100591
  • Pretorius C, Coyle D (2021) Young People’s Use of Digital Tools to Support Their Mental Health During Covid-19 Restrictions. Front. Digit. Health 3:763876. DOI: https://doi.org/10.3389/fdgth.2021.763876